Calendar

Jun
20
Thu
Oligo Nation’s Inspiring Hope Gala Boston
Jun 20 @ 5:45 pm – 9:00 pm

 

Oligo Nation’s First Annual Boston Gala – Inspiring Hope celebrates advances in medical research and recognizes those who have gone above and beyond to further our life-saving mission. Oligo Nation is committed to funding critical research and supporting patients with oligodendroglioma and their families. Last year we invested $1.4M in research with the goal of bringing new treatments to the clinic within 5 years.

Learn more here.

Jul
14
Sun
Fast Track to a Cure Chicago
Jul 14 @ 8:00 am

Fast Track to a Cure 5K is inspired by Oligo survivors, families and friends who have a passion for our mission and want to make a difference in the lives of those living with Oligodendroglioma.

These families are working to find a cure.


McManus Family Story

After my family received the devastating news of my father’s brain tumor diagnosis, each visit to the hospital, whether for surgery, radiation, chemotherapy, or MRI scans was filled with uncertainty as we anxiously awaited his return.

Faced with the unknowns of his diagnosis, I, then a premedical student, became dedicated to a growing understanding of the disease through research. It soon became apparent that while considerable attention was given to glioblastoma (GBM), treatment options for oligodendroglioma patients remained limited.

Research provides the promise of reshaping the course of this disease. Yet, for many oligodendroglioma patients, the journey involves multiple surgeries, rounds of radiation, and chemotherapy – a treatment regimen that has not changed in over two decades. The uncertainty of whether my father needed a second operation due to inconclusive MRI findings, unable to distinguish between inflammation and tumor cells, further highlighted the urgent need for more effective treatment strategies.

My dad has always been my running buddy and biggest supporter. His resilience inspired my involvement in organizing this 5k event. Together with Oligo Nation, we are dedicated to expanding the treatment options for those affected by oligodendroglioma. As a group of young researchers ourselves, we recognize the critical role of translational research. By supporting and advocating for oligodendroglioma research, Oligo Nation has helped shift a landscape devoid of meaningful research to one with promising clinical trials emerging in just five years.

We are thrilled to contribute to this momentum towards meaningful change. Please join us as we run/walk in support of those affected by this disease. As part of the Oligo Nation community, we can make a difference for our loved ones and countless others.

 

Sign-up for Fast Track to a Cure 5K Chicago.

Sep
21
Sat
Fast Track to a Cure Bay Area
Sep 21 @ 8:30 am

Fast Track to a Cure 5K is inspired by Oligo survivors, families and friends who have a passion for our mission and want to make a difference in the lives of those living with Oligodendroglioma.

These families are working to find a cure.


The Currier Family

Three years ago, the Currier family teamed up with Oligo Nation to support research to find a cure for this rare form of brain cancer. Stanley Currier had just experienced 2 grand mal seizures and was shortly thereafter diagnosed with Grade 3 oligodendroglioma. Our family, friends, and colleagues jumped on board to do everything in our power to help bring research into the clinic with a mission for long term survivorship for Stanley and others affected by this cancer. We are so grateful to so many of you for your ongoing support!

We would love for you to join us in person or virtually on September 21!


Lauren Montanelli Story

 

My journey started on Nov 9, 2021, during a work meeting when four words that I was thinking about saying in a conversation came out differently. On January 3, 2022, I went to the ER with speech issues and forehead pressure and got an MRI.  The ER doctor told me the image was a mass, but I knew this because my body had told me for over a year.  The days went fast and a lot of decisions were made and my surgery was on my mom’s birthday, January 20, at UCSF and I was given the diagnosis of Anaplastic Oligodendroglioma grade 3, IDH mutated, 1p/19q co-deleted Cancer.

After surgery, I wanted to work as much as possible to preserve my speech. My goal was to say my kids’ names “Austin and Avery.” I still have a speech disability and reading comprehension issues but every day, I am stronger and I work so hard on my new normal.

I finished chemo in October 2022, and I started back to work full-time shortly after … slower than before surgery but I am so proud of myself. My support team of friends, family, colleagues, doctors and therapists are amazing, especially my speech therapist – I don’t know what I would do without her.

If anyone is struggling with speech changes, a brain tumor or cancer, I am an open book, please contact me.

Sign-up for Fast Track to a Cure 5K BAY AREA.