Oligo: Short for Oligodendroglioma, a form of brain cancer arising from the glial cells. There are no known cures or effective treatments. Average life expectancy is 8-10 years.
Nation: A body of people, associated with a particular territory, that is sufficiently conscious of its unity to seek or to possess rights or self-governance.
Right now, we are surely Oligo but not yet a Nation. Many of us feel isolated by this disease, the constant worry, and perhaps the feeling that there is little that can be done. We are in a real and scary way at the mercy of this disease. We don’t realize that we can unite with hundreds or even thousands of others affected by Oligo to make our voices are heard and insure that research is funded to deliver the effective treatments we so desperately need.
So what is Oligo Nation? The hope is that it will be a place that unites and mobilizes the Oligo community to take positive actions insure that the medical research brings new Oligo treatments to market ASAP. Ultimately, Oligo Nation needs to be more than that, but what directions it takes will be based on what you and others want and share with us. Collaborating and learning from each other will be a key to our